Pub Date: May 1, 2026

Pub Date: May 1, 2026Pub Date: May 1, 2026Pub Date: May 1, 2026
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Pub Date: May 1, 2026

Pub Date: May 1, 2026Pub Date: May 1, 2026Pub Date: May 1, 2026
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See the Music Hear the Light

Phoebe

Williams syndrome

Williams syndrome

"Phoebe’s waiting for me on the afternoon bus when I get on. I almost don’t want to sit with her, because it’s too hard to see her sympathy. But I wouldn’t ever want to hurt her feelings, so I slowly go to our seat. She’s got her backpack on her lap, one hand in the outside pocket. I take a deep breath, because there’s only so much a little bald plastic doll can do to make a person feel better. 

 But her hands bring out something else—a stack of small, folded, flat, triangular things. Paper things. Blue, red, yellow, green, and white. 

 'I repurposed your homework,' she tells me, unfolding the yellow thing into a small paper horse with wings. 

 Origami! I can see through the color that the slightly-crinkly paper has lines and writing on it—my writing!

  'It’s called a Lungta,' Phoebe says and hands it to me. 'A wind horse.'

  I carefully turn it with my fingers, looking at it from all sides. 'How did you do it? How did you do five so fast?'"


Copyright © 2026 by Anne C. LeMieux

Williams syndrome

Williams syndrome

Williams syndrome

"I had a missing piece. One piece of one chromosome in every cell in my body was missing a teeny tiny piece of genes, genes containing DNA with the information a body needs to grow itself.

 'Can’t they put it back in?' I asked.

 Mom shook her head. 'Not at this point in time.'

  As we sat there, I thought about one of my old favorite books, about a cheerful little circle with a pie-shaped piece missing from it, rolling along, singing its song, always looking to find its missing piece.                                        

 'Ahhhh…' I thought.  'So that’s how it is…'"


Copyright © 2026 by Anne C. LeMieux

Daniel

Williams syndrome

Daniel

“'NOW FOLKS, GET READY TO ROCK OUT WITH SOME TEAM SPIRIT AS THE EAGLE MARCHING BAND PERFORMS A MEDLEY OF LED ZEPPELIN SONGS!'

 The drill formats aren’t too tricky—I don’t have to move around much. After the blimp, we form a mallet shape, for Thor’s hammer in 'Immigrant Song.' Then we rotate into a sun and a star for 'Kashmir,' staying in that formation while the trumpet soloist and the flutes come forward, and the flag squad forms into step-shapes for 'Stairway.' We finish up with our 'Fight Song,' then it’s pivot, assemble into our columns, and get off the field! 

 I am elated! I did it!! 

 There’s a thunderous rumble from the stands as spectators stomp the metal bleachers with their feet while we double-time march off the field as the teams pours on. I'm marching straight forward in my elation when my foot catches on the turf. My ankle rolls and my body starts to pitch forward. My arms automatically flail to steady myself, pushing the kid in front of me. Who happens to be Richie.

 He stops, turns, bats my arms away, and shoves me backwards into Mikey Toledo. I lose my balance, drop down on one knee, and my hat falls off. It happens so fast my mind can’t keep up with the happening. Kids march around me. I’m caught in a stampede. No one helps. 

 Then the rest of the band is in the end zone and I’m able to get up, grab my hat, and stumble off the field. Red-haired Brian is standing there. He looks at my stomped, bedraggled plume when I hand it to him. He doesn’t say anything, but he doesn’t put it in the plume box with the others. "


Copyright © 2026 by Anne C. LeMieux

See the Music Hear the Light

When music is your superpower...

"All the studios have acoustic insulation that blocks outside noise and makes a pillowy silence that seems to be just waiting for music to fill it.  Studio 3 has blue carpeting and pale-yellow walls. In the middle are two gray molded plastic chairs, two sax stands, and two music stands. On one of the walls, there’s a blue bulletin board. On it are black and white pictures of some of Kevin’s favorite sax players, with some of their words of wisdom: 


'One positive thought produces millions of positive vibrations.' John Coltrane.

'The things I’m after musically are clarity, emotional communication.' Paul Desmond.

 'Hear with your eyes, see with your ears.' Charlie Parker.


That last one is my favorite. That’s how music is for me. It’s always been that way, sound and color."


See The Music Hear The Light. Copyright © 2026 by Anne C. LeMieux 

Copyright © 2026 See the Music, Hear the Light - All Rights Reserved.

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